For Me (Self Advocates)

For MeThis section is for kids, teens and adults with Down syndrome. “For me” is the place to share your thoughts, stories, favorite links and photos. This is a way to share what is new with you, make new friends, stay in touch with old friends and to make the DSG community even stronger!

We invite you to submit items to be placed on this page. Email items to

What should I send?

  • Poems
  • Stories
  • Photos
  • Self-advocacy topics
  • Art work
  • Favorite links

Not sure what it means to have Down syndrome?

Down Syndrome and You is a great booklet made by the Canadian Down Syndrome Society that will help you understand what it means to have Down syndrome.

Checkout the websites below to learn about some amazing people with Down syndrome just like you!

Read a Time Magazine article about the wedding of Sujeet Desai and Carrie Bergeron who both have Down syndrome.

Annie Forts – The Annie Forts “UP” Syndrome Fund, Inc. was created to assist and encourage young people with Down syndrome.

For Me Chris Burke is one of America’s favorite personalities. Through his work he has single-handedly transformed America’s image of the mentally and physically handicapped. Chris is also a spokesperson for the National Down Syndrome Society.

Karen Gaffney received her high school diploma from St. Mary’s Academy in Portland, Oregon in 1997. Having completed all of the Oregon State requirements for a regular high school diploma. She completed requirements for an AS degree and a certificate to be a teacher’s aide at Portland Community College in March 2001. Read an inspiring story about Karen’s latest swim across Lake Tahoe!

Michael Jurogue Johnson is a full time artist. Art is his job. He paints almost every day and he also works in the cottage industry that has developed from his talent. Michael was born with Down syndrome, but he was also born with a sense of wonder, an ability to appreciate simple things, a good sense of humor, and the determination to communicate with others. Art opened up Michael’s world.

Rachel Roberts has had an overwhelming desire to produce a coloring book with large, easy to color drawings, for children with special needs, such as herself, so they too could begin learning to read the way she did.. with sight words. Rachel was born with Down syndrome, however with her self motivation, encouragement and guidance of her family, some dedicated teachers… and God, she is striving to reach her potential.

Sujeet Dasai graduated with honors from high school, has been accepted to a music academy, plays violin, piano, clarinet and bass clarinet, has a black belt in Tae Kwon Do, rides his jet ski, and much, much more. Oh yeah, he just happens to have Down syndrome.

“ See my daughter first, not her disability.”

~ Parent

“I have learned more from my son than I could have ever possibly imagined.
I hope I can give him as much as he has given me as he continues to grow up.”
~Deb Balderas

 Every time the Green Bay Packers make a first down,
UnitedHealthcare will donate to Wisconsin Upside Down!
~First Downs For Down Syndrome

“Our family learns, smiles, laughs, cries and thanks God for not only opening our hearts, but opening our eyes to what the picture [life] should be.”
~Marybeth Mielke

 “Down syndrome is a gift that can’t wait to be opened.”
~Diane Moede

 “One of my greatest joys is when my 3rd grade daughter,
who has Down syndrome, reads me a bedtime story.”
~Robbin Lyons

 “Having a child with Down syndrome has introduced me to so many wonderful people and given me a new respect for the differences in all of us.”
~Amy Elfner

Thanks to: