Who we are: A group of energetic parents, concerned community leaders, and self advocates interested in enhancing the quality of life of individuals with Down syndrome in southeastern Wisconsin.
The mission of Wisconsin Upside Down is to provide advocacy, awareness, education & support to benefit people with Down syndrome and their communities.
The goal of Wisconsin Upside Down is to offer life-long support for people with Down syndrome through programs ranging from prenatal diagnoses to issues facing adults with Down syndrome.
We envision a world in which people with Down syndrome live as valued members of the community where they live, work, go to school and giving back to the community.
Wisconsin Upside Down offers a variety of support including: on-line parent support, sibling support, membership grants, adaptive art, theater and sports programs, programs for educators, prenatal support, training for medical professionals, financial aid to the families of cancer patients, who have Down syndrome and much more. The group offers many social opportunities for people with Down syndrome of all ages and hosts awareness events like the “Buddy Walk” each year. We host picnics, teen nights, dances, ice cream socials and other parties. We offer speakers for schools and community organizations interested in learning about Down syndrome or promoting Down syndrome awareness.
Robbin Thomas Lyons, President, co-founder
Gina Brown, Vice President
Kim Pinsch, Sectretary
Catherine Kolton, Community Events Coordinator
Ashley Stohl, St. Croix River Valley Director
Kelly Lyons, Self Advocates
Teen Advisory Board:
Regan Lyons, Jon Olsen, Claudia Shabes, Gary Griepentrog