Who we are: A group of energetic parents, concerned community leaders, and self advocates interested in enhancing the quality of life of individuals with Down syndrome in southeastern Wisconsin.
The mission of Wisconsin Upside Down is to empower individuals with Down syndrome by providing them, their families, and the community with the best available information, advocacy, and support. The goal of Wisconsin Upside Down is to offer life-long support for people with Down syndrome through programs ranging from prenatal diagnoses to issues facing adults with Down syndrome.
Wisconsin Upside Down offers a variety of support including: on-line parent support, sibling support, membership grants, adaptive art, dance and sports programs, programs for educators, prenatal support, training for medical professionals, financial aid to the families of cancer patients, who have Down syndrome and much more. The group offers many social opportunities for people with Down syndrome of all ages and hosts awareness events like, Kelly’s Upside Down Ball and the “Buddy Walk” each year. We host picnics, karaoke, ice cream socials and other parties. We offer speakers for schools and community organizations interested in learning about Down syndrome or promoting Down syndrome awareness.
Robbin Thomas Lyons, President
Advocate, Mom, Musician
Martin C. Hughes, Vice president
Coach, Advocate, Father
Stephanie Brester, Treasurer
Kathy Richardson, Secretary
Eileen Walker and Kelly Lyons, Self Advocates
Frank Csizmadia, Members at large
Kathy Gallenberger, Members at large
Mother, Musician, Empathetic
Kelly Rose, Members at large