About Us

About Us

About UsWho we are: A group of energetic parents, concerned community leaders, and self advocates interested in enhancing the quality of life of individuals with Down syndrome in southeastern Wisconsin.

The mission of Wisconsin Upside Down is to provide advocacy, awareness, education & support to benefit people with Down syndrome and their communities.

The goal of Wisconsin Upside Down is to offer life-long support for people with Down syndrome through programs ranging from prenatal diagnoses to issues facing adults with Down syndrome.

We envision a world in which people with Down syndrome live as valued members of the community where they live, work, go to school and giving back to the community.

Wisconsin Upside Down offers a variety of support including: on-line parent support, sibling support, membership grants, adaptive art, theater and sports programs, programs for educators, prenatal support, training for medical professionals, financial aid to the families of cancer patients, who have Down syndrome and much more.  The group offers many social opportunities for people with Down syndrome of all ages and hosts awareness events like the “Buddy Walk” each year.  We host picnics, teen nights, dances, ice cream socials and other parties. We offer speakers for schools and community organizations interested in learning about Down syndrome or promoting Down syndrome awareness.

Robbin Thomas Lyons, President, co-founder

Gina Brown, Vice President

Kim Pinsch, Sectretary

Catherine Kolton, Community Events Coordinator

Ashley Stohl, St. Croix River Valley Director

Paula Nordwig

Sandy Slaven

Kelly Lyons, Self Advocates

Teen Advisory Board:

Regan Lyons, Jon Olsen, Claudia Shabes, Gary Griepentrog

Advisory Council:

Deb Balderas- co-founder
Emily Cornell- education
Amy Elfner co-founder
Dacia Hopfensberger-Education & Inclusion
Tim Langer-legal
Julie Van Zealand-Buddies, speech Therapy

“ See my daughter first, not her disability.”

~ Parent

“I have learned more from my son than I could have ever possibly imagined.
I hope I can give him as much as he has given me as he continues to grow up.”
~Deb Balderas

 Every time the Green Bay Packers make a first down,
UnitedHealthcare will donate to Wisconsin Upside Down!
~First Downs For Down Syndrome

“Our family learns, smiles, laughs, cries and thanks God for not only opening our hearts, but opening our eyes to what the picture [life] should be.”
~Marybeth Mielke

 “Down syndrome is a gift that can’t wait to be opened.”
~Diane Moede

 “One of my greatest joys is when my 3rd grade daughter,
who has Down syndrome, reads me a bedtime story.”
~Robbin Lyons

 “Having a child with Down syndrome has introduced me to so many wonderful people and given me a new respect for the differences in all of us.”
~Amy Elfner

Thanks to: